Agenda of the November 30, 2010 NCVHS Executive Subcommittee Strategy Session

Review agenda and plans for the session

Required Assignments:
Standards mandates from ACA and HIPAA

Potential focus
Secondary uses of data?

HHS Community Data Initiative has opened a new world with a partnership between web innovators and government data.

In less than a year, transformative uses have emerged that empower and educate individuals on health and healthcare, as well as inform policy makers by juxtaposing data about health/illness in relation to community resources.

Currently, the data is form HHS.gov. Could this eventually include EHR data that has been aggregated or anonymized?
(As has been discussed in IOM panel on Rapid Learning Health System)

Question for the Committee
Does it make sense for us to focus on this future state and the implications (beyond HIPAA!) for quality, standards, privacy and population health?

This builds on the Quality Health Measures Road Map, but potentially takes it to a broader patient centered model using I-phone apps and having patients direct where the data goes.

This builds on the Populations proposals on the topics below, but changes the perspective from what could be done to what is being done.

Linkages of data: EHR, administrative, mortality, surveys

Linkages to data about influences on health – environment exposures, housing, education, socioeconomic status, etc.

Health indicators dashboard to monitor health reform

This opens up new horizons for Standards and compelling issues for Privacy and Stewardship.

This ties in with IOM Rapid Learning Health System – creating infrastructure that makes secondary uses routine, supported and facile.

Given that this revolution has occurred through data.gov, it stands to reason that this emerging data fals within the NCVHS charter to advise the Secretary “on health data, statistics, privacy, national health information policy, and the Department’s strategy to best address those issues.”

Once direction is decided upon, how do we configure ourselves? Does the current subcommittee structure make sense? 4 subcommittees? 2 co-chairs?

Committee Process – Summary of proposed process changes. Preview of topics for full committee before letter comes forward

Maintaining impact – Assuring relevance in the field: Interface with other HHS Committees – beyond HHS?