National Committee on Vital and Health Statistics
Subcommittee on Populations
Hearing on Health Data Needs for Asian, Native Hawaiian and Other Pacific Islander Populations
November 13-14, 2003
The Palace Hotel
2 New Montgomery Street
San Francisco, CA 94105
Phone: 415.512.1111
| Thursday, November 13 | ||
| 9:00 a.m | Welcome and Introductions | Vickie Mays, Ph.D., M.S.P.H., Chair |
| 9:05 a.m. | Overview of Subcommittee on Populations, NCVHS, Purpose for Hearing and Review of the Agenda | Chair |
| 9:20 a.m. | A National Perspective on ANHOPI Health Data Needs | Christina Perez, Regional Minority Health Coordinator, Region IX |
| 9:30 a.m. | Overview of Pacific Island Health Data Issues | Christina Perez, Regional Minority Health Coordinator, Region IX |
| 9:50 a.m. | Break | |
| 10:00 a.m. | The Need for Detailed ANHOPI for Health Policy | Ho Tran, M.D., Asian Pacific Islander American Health Forum
|
| 10:20 a.m. | Accessing ANHOPI Data | Gem Daus, Asian Pacific Islander American Health Forum Census Information Center 
Census Data |
| 10:40 a.m. | Questions and Discussion | Members and Staff |
| 10:50 a.m. | BREAK | |
| 11:00 a.m. | ANHOPI Measurement and Classification Issues | Elena Yu, Ph.D., The Johns Hopkins University |
| 12:00 noon | Questions and Discussion | Members and Staff |
| 1:00 – 2:15 p.m. | LUNCH | |
| 2:15 p.m. | Questions and Discussion | Members and Staff |
| 2:45 p.m. | Subcommittee Deliberation of Testimony | Members and Staff |
| 4:45 -5:00 p.m. | ADJOURN AND CLOSING COMMENTS |
| FRIDAY, November 14, 2003 | ||
| 9:00 a.m | Welcome and Introductions | Vickie Mays, Ph.D., M.S.P.H., Chair |
| 9:15 a.m. | Healthcare Quality Indicators For ANHOPI Populations | Ellen Wu, California Pan Ethnic Health Network |
| 09:35 a.m. | Asian Americans and Cancer | Scarlett Lin Gomez, Ph.D. Northern California Cancer Center |
| 09:55 a.m. | Questions and Discussion | |
| Health Data Needs for Pacific Islanders | ||
| 10:45 a.m. | Palau Telephone Conference |
Greg Dever, M.D., Director, Bureau of Hospital & Clinical Services Julie Tellei |
| 11:15 a.m. | Questions and Discussion | |
| 12:00 p.m. | LUNCH | |
| 01:00 p.m. | Hawaii | Catherine Sorenson, Ph.D., Dept. of Health, Hawaii |
| 01::15 p.m. | Qualitative Data Issues for Native Hawaiians and American Samoans | Carol Murray, Dr.PH, University of Hawaii at Manoa
Hardy Spoerhr, Executive Director, Papa Ola Lokahi Gerald Ohta, Hawaii Dept. of Health |
| 01:45 p.m. | Questions and Discussion | Members and Staff |
| 02:15 p.m. | Subcommittee Deliberation of Testimony | Members and Staff |
| 03:30 p.m. | Next Steps – Adjourn |
11/10/03
Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible.
Times, topics, and speakers are subject to change. For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at http://www.ncvhs.hhs.gov/
HEARING QUESTIONS
For Pacific Island populations, what techniques are used to collect data on race and ethnicity? How does language, population size or population geography impact the ability to gather data on the health status, health behaviors, and health experiences of these populations? What recommendations could you make to DHHS for addressing these issues?
Do you believe that there is a significant problem of misclassification of racial and ethnic categories in existing data sets? For which data sets? For which categories? What steps, such as possibly partnerships with advocacy groups, are in place for studying the issue and for making corrections?
Is data collected on ethnicity, language spoken and national origin in ongoing surveillance data sets? On what data sets are these data collected? Please provide examples.
What barriers exist to data collection, analysis and disease surveillance for eliminating health disparities in ANHOPI populations? Describe strategies that DHHS could use to remove those barriers.
Is data collected on ethnicity, language spoken and national origin in ongoing surveillance data sets? On what data sets are these data collected? Please provide examples. What types of health data would you recommend that DHHS collect?
Current data collection methods emphasize the protection of the privacy and confidentiality of survey respondents and require a certain number of responses in order to report data. Given these considerations as applied to small populations, what number of responses would you feel are to low to report?
What are some strategies that DHHS could use to increase the capacity? for ANHOPI researchers and organizations to conduct health disparities research, demonstrations and evaluations?
Please describe the strategies that DHHS could use to support relationships between universities, academic researchers, communities and State and local health entities.
Are there any accountability mechanisms you recommend that DHHS could institute? to ensure the development and maturation of these partnership relationships?
How could DHHS support partnerships with ANHOPI communities to improve safety and quality in health care?
Do the race and ethnic guidelines from OMB have adequate utility for the ANHOPI populations or is there a need to collect information using other or expanded categories?