Final Agenda

NATIONAL COMMITTEE ON VITAL AND HEALTH STATISTICS

SUBCOMMITTEE ON PRIVACY, CONFIDENTIALITY, & SECURITY

Hearing on “Personal Health Records”

May 20 – 21, 2009
Hubert H. Humphrey Building, Room 800
200 Independence Ave, SW
Washington, D.C. 20201

June 9, 2009
National Center for Health Statistics, Auditorium
3311 Toledo Road
Hyattsville, MD 20782

Printable Acrobat Agenda

Wednesday, May 20, 2009

Transcript
9:00 – 9:15 a.m. Introductions and Opening Remarks Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 – 10:45 a.m. Panel I: What Will Consumer-Facing Health IT Look Like in 5 or 10 Years? Robert L. Coffield, J.D.
Flaherty, Sensabaugh & Bonasso, PLLCJane Sarasohn-Kahn, M.A, M.H.S.A.
THINK-Health

Daniel J. Weitzner, J.D.
Policy Director, Technology and Society
World Wide Web Consortium
10:45 – 11:00 a.m. Break
11:00 – 12:30 p.m. Panel II: What Will Consumer-Facing Health IT Look Like in 5 or 10 Years? (Continued) James Allen Heywood
Co-founder and Chairman 
PatientsLikeMEJosh Lemieux
Director of Personal Health Technology
Connecting for Health, Markle Foundation

Don Mon, Ph.D.
Vice President of Practice Leadership
American Health Information Management Association
12:30 – 1:30 p.m. Lunch
1:30 – 3:00 p.m. Panel III: PHRs Offered by Non-Provider/Plan Entities Marc Donner, Ph.D.
Director of Engineering
Google HealthColin Evans
Chief Executive Officer
Dossia

Philip Marshall, M.D., M.P.H.
Vice President, Product Strategy
WebMD Health

Michael Stokes, M.S.
Director of Policy and Compliance
Health Solutions Group
Microsoft Corporation
3:00 – 3:15 p.m. Break
3:15 – 4:45 p.m. Statements from members of the public
3:45 – 4:45 p.m. Discussion
4:45 – 5:00 p.m. Administrative announcements and prepare for Day 2
5:00 p.m. Recess until May 21

Thursday, May 21, 2009

Transcript
9:00 – 9:15 a.m. Introductions and Opening Remarks Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 – 10:45 a.m. Panel IV: Plans and PHRs Joy M. Grossman, Ph.D.
Senior Health Researcher
Center for Studying Health System Change
Testimony was based on an article that can be found at this address:http://www.hschange.org/CONTENT/1046/Christopher Sullivan, Ph.D., Administrator
Office of Health Information Technology
Florida Agency for Health Care Administration (via phone)

Bruce H. Taffel, M.D.
Vice President, Chief Medical Officer
SharedHealth
10:45 – 11:00 a.m. Break
11:00 – 12:30 p.m. Panel V: Providers and PHRs Gail Graham, Director of Health Data and Informatics
Veterans Health Administration
Department of Veterans AffairsAnna-Lisa Silvestri, M.P.H.
Vice President, Online Services
Kaiser Permanente HealthConnect

James M. Walker, M.D.
Chief Health Information Officer
Geisinger Health System

Matthew Wynia, M.D., M.P.H.
Director of the Institute for Ethics
American Medical Association
12:30 – 12:50 p.m. Lunch Break
12:50 – 2:00 p.m. Working Lunch/Discussion
2:00 p.m. Recess until June 9, 2009

Tuesday, June 9, 2009

Transcript
9:00 – 9:15 a.m. Introductions and Opening Remarks Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 – 10:45 a.m. Panel VI: Federal Demonstration Projects Patrick Conway, M.D.
Office of the Assistant Secretary for Planning and Evaluation, HHS
(for Medicare PHR Choice, pilot in Utah and Arizona)Seth Edlavitch, M.P.H., M.H.A.
Program Manager & Project Director
My Personal Health Record, South Carolina
(MyPHRSC)

Chrislyn Gayhead, B.S.N, RN
Office of e-Health and Standards
Centers for Medicare and Medicaid Services, HHS
(for MYPHRSC)
10:45 – 11:00 a.m. Break
11:00 – 12:30 p.m. Panel VII: Consumer Advocates and Attitudes Susannah Fox
Associate Director, Digital Strategy
Pew Research CenterDave deBronkart
(Blogger, “e-patient Dave”)
Co-Chair, Society for Participatory Medicine

Deven McGraw, J.D.
Director, Health Privacy Project
Center for Democracy and Technology

Robert Gellman, J.D.
Independent Privacy Consultant and
Author, “Personal Health Records: Why Many PHRs Threaten Privacy”
World Privacy Forum
12:30 – 1:30 p.m. Lunch
1:30 – 3:00 p.m. Discussion
3:00 – 3:15 p.m. Break
3:15 – 3:45 p.m. Statements from members of the public
3:45 – 4:45 p.m. Discussion
4:45 – 5:00 p.m. Plan next steps
5:00 p.m. Adjournment

Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible.

Times, topics, and speakers are subject to change.  For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at http://www.ncvhs.hhs.gov
All visitors at the Hubert H. Humphrey Building and the National Center for Health Statistics must be a citizen of the United States unless they have made prior advance arrangements to attend. Please bring valid photo identification.

Oct. 16, 2009