National Committee on Vital and Health Statistics (NCVHS)
Agenda
Next Generation Vital Statistics: A Hearing on Current Status, Issues and Future Possibilities
Hubert H. Humphrey Building,
Room 705A,
Washington, DC
September 11-12, 2017
Hearing Background Information
Vision
A sustainable, secure and robust vital records infrastructure that meets the nation’s need for timely and accurate information
Guiding Question
How do we transform today’s vulnerable vital records data collection network into a network of state systems that produce accurate and timely information supporting a breadth of local, state and federal data needs?
Objectives
Using a multi-stakeholder presentation and generative discussion approach, this hearing will:
- Identify the essential elements of the vital statistics system – the components and as a whole,
- Assess its current status and risks to its viability, and
- Consider what actions are needed both to protect and improve the system.
Tentative Agenda
| Monday, September 11, 2017 | ||
| 9:00 am | Welcome and introductions | Bruce Cohen, PhD & Dave Ross, ScD Hearing Co-Chairs |
| 9:15 am | Overview – Importance and Need for Vital Records: Local, State, Federal, International | Tara Das, PhD, MPH, MLIS: Texas Dept. of Health Services
Valérie Gaston: Statistics Canada, Health Statistics |
| Committee Q & A | ||
| 10:15 am | Panel 1. Current Status for Vital Records: State and Local Data Producers
FOCUS: Why do states collect vital records? How are they collected? How are they managed? How and why are they shared? |
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A) Introduction |
Shawna A. Webster, CAE: NAPHSIS
Richard H. McCoy: Vermont Dept. of Health and NAPHSIS |
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B) Births |
Angela Shaw-Perkins: Medstar Washington Hospital Center | |
| 15 minute break | ||
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C) Death |
Robert C. Moore, IV, CFSP, CCO: Funeral director and NFDA
John Fudenberg, D-ABMDI: Clark Co. Office of the Coroner/Medical Examiner and IAC&ME |
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D) State/Jurisdictional Health Information Technology and Information Technology: |
Kari Guida, MPH, MS: MN Dept. of Health
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| Committee Q & A
Audience Input |
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| 11:55 am | Discussion and Public Comment | |
| 12:15 pm | Lunch | |
| 1:15 pm | Panel 2. Current Status of Vital Records: Federal Perspective
FOCUS: Why do federal agencies need vital records? How are they managed? How and why are they shared and used? |
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A) Federal Data Steward |
Delton Atkinson, MPH, PMP: NCHS,CDC | |
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B) Federal Health Users |
Karen Matsuoka, PhD: CMCS, CMS
William Riley, PhD: OBSSR, NIH |
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| Committee Q & A | ||
| C) Other Federal Users | Stephen C. Goss, ASA, MAAAA: Social Security Administration
Corryne Carter, MPA: Dept. of State Carolyn Clancy, MD: Dept. of Veterans Affairs |
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| Committee Q & A
Audience Input |
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| 3:15 pm | Break | |
| 3:30 pm | Panel 3. Current Status for Vital Records: Other Users of Vital Statistics Data
FOCUS: Who are other users of vital statistics? What are these data needed for? |
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A) State users |
Rebecca Coyle, MSEd: AIRA
Michael D. Warren, MD, MPH, FAAP: TN Dept. of Health and AMCHP |
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B) Researchers |
Mohsen Naghavi, MD, PhD: Univ. of Washington
Rebecca B. Russell, MSPH: March of Dimes |
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| Committee Q & A | ||
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C) Commercial users |
Susan McDonald, Pension Benefits Information, LLC
Edward Hall, JD, Verus Financial, LLC Steven M. Emmert, JD: LexisNexis Risk Solutions |
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| Committee Q & A
Audience Input |
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| 5:15 pm | Discussion and Public Comment | |
| 5:45 pm | Adjourn |
| Tuesday, September 12, 2017 | ||
| 8:30 am | Reconvene & Welcome
Framing the Day:
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Dave Ross, ScD and Bruce Cohen, PhD: Hearing Co-Chairs |
| 8:45 am | Panel 4. Challenges and Opportunities: Federal Level
FOCUS: What are the current challenges and issues for federal users, and how might they be addressed? |
Delton Atkinson, MPH, PMP: NCHS, CDC
Eric Hughes, PhD: MITRE Corp. (under contract w/NCHS) Caitlin Cross-Barnet, PhD: CMMI, CMS Lekisha Daniel-Robinson, MSPH: CMCS, CMS Ursula Bauer, PhD: NCCDPHP, CDC William Riley, PhD: OBSSR, NIH Karen P. Glenn, FSA, EA, MAAA and K. Mark Bye, ASA: Social Security Administration Benjamin Bolender, PhD: Census Bureau, Dept. of Commerce Corryne Carter, MPA: Bureau of Consular Affairs, Dept. of State |
| Committee Q & A
Audience Input |
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| 10:15 am | Break | |
| 10:30 am | Panel 5. Challenges and Opportunities: State and Local Levels
FOCUS: What are the current challenges and issues for State and local users, and how might they be addressed? |
Elizabeth W. (Lou) Saadi, PhD: KS Dept. of Health & Environment and NAPHSIS
Terra J. Abrams, MBA, BPM: DC Dept. of Health Mary Ann Sens, MD, PhD: Grand Forks County Coroner’s Office, Univ. of ND and NAME Mary Beth Kurilo, MPH, MSW: ARIA Amy Zimmerman, MPH: RI Exec. Office of Health & Human Services |
| Committee Q & A
Audience Input |
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| 12:10 pm | Discussion and Public Comment | |
| 12:30 pm | Lunch | |
| 1:30 pm | Panel 6. Future Directions
FOCUS: In light of evolving technology and practice, what are the opportunities to reinforce and strengthen the national vital statistics system? |
John R. Lumpkin, MD, MPH: RWJF |
| Committee Q & A
Audience Input |
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| 3:00 pm | Discussion and Public Comment | |
| 3:25 pm | Instructions for Audience Input and Break |
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| 3:45 pm | Audience Input | |
| 4:00 pm | Moving Forward: An Integrated Vision – Discussion
Focus: Identify key issues and key themes. Formulate framework to synthesize testimony. |
R. Gibson Parrish II, MD, Facilitator |
| 4:45 pm | Wrap-up | Dave Ross, ScD and Bruce Cohen, PhD |
| 5:00 pm | Adjourn | Dave Ross, ScD and Bruce Cohen, PhD |
QUESTIONS FOR DAY 1, PANEL 1
- NAPHSIS and State Vital Health Registrar
- Explain where your role fits into the overall vital statistics system process. What is the workflow of that process at a high level?
- What are the legal underpinnings of the current system?
- How is the system financed? How does the financing approach impact your ability to participate in broader electronic data exchange?
- How are the data used and by whom?
- Births
- Explain where your role fits into the overall vital statistics system process. What is the workflow of that process at a high level?
- How does data sharing and transmission work?
- How are data protected?
- How are privacy and confidentiality issues addressed?
- How are the data used and by whom?
- Deaths
- Explain where your role fits into the overall vitals data process. What is the workflow of that process at a high level?
- How does data sharing and transmission work?
- How are data protected?
- How are privacy and confidentiality issues addressed?
- How are the data used and by whom?
- State/Jurisdictional IT Lead
- Explain where your role fits into the overall vitals data process. What is the workflow of that process?
- How does data sharing and transmission work?
- How are data protected?
- How are privacy and confidentiality issues addressed?
QUESTIONS FOR DAY 1, PANEL 2
- How are vital statistics used by your agency?
- How important of a role do they play?
- What are the quality concerns regarding the data?
- How are the data obtained/managed/shared/protected?
- How do you verify or confirm the authenticity of birth and death certificates?
QUESTIONS FOR DAY 1, PANEL 3
- What do you use the data for? Why are they important?
- What is the current “experience” with vital records?
- How does data sharing, transmission and protection work?
QUESTIONS FOR DAY 2, PANEL 4
- From the vantage point of your agency, what are the challenges & barriers you are encountering in your use of vital records and statistics?
- From your agency’s perspective, what kinds of solutions do you believe would be helpful?
- What would be some possible consequences if current challenges are not addressed?
QUESTIONS FOR DAY 2, PANEL 5
- From the vantage point of your organization, what are the challenges & barriers you encounter in your using, accessing, or producing vital records and statistics?
- From your organization’s perspective, what kinds of solutions do you believe would be helpful?
- What would be some possible consequences if current challenges are not addressed?
QUESTIONS FOR DAY 2, PANEL 6
- What opportunities are available to leverage technology/new innovation to support the vital statistics system?
- How would these opportunities improve the vital statistics system, e.g. data quality and timeliness?
- What issues and challenges need to be addressed? What are options for approaches?
NCVHS
Next Generation Vital Statistics: A Hearing on Current Status,
Issues and Future Possibilities
List of Testifiers
Opening Session
| Tara Das, PhD, MPH, MLIS State Registrar and Director, Vital Statistics Texas Department of State Health Services 1100 W. 49th Street Austin, TX 78756 |
Valérie Gaston, MA Chief, Vital Statistics Health Statistics Division Statistics Canada 150 Tunney’s Pasture Way Ottawa, Ontario, CA K1A016 |
Panel 1. Current Status for Vital Records: State and Local Data Producers
A) Overall
| Shawna Webster, CAE Executive Director, National Association for Public Health Statistics and Information Systems (NAPHSIS) 962 Wayne Avenue, Suite 701 Silver Spring, MD 20910 |
Richard H. McCoy President-Elect, NAPHSIS Director, Center for Health Statistics Chief, Public Health Statistics Vermont Department of Health 108 Cherry Street Burlington, VT 05402 |
B) Births
| Susan Zannis Vital Statistics Supervisor Southern Nevada Health District PO Box 3902 Las Vegas, NV 89127 |
Angela Shaw-Perkins Birth/Death Registrar MedStar Washington Hospital Center 110 Irving Street NW Suite 2A-39 Washington DC, 20010 |
C) Deaths
| Robert C. Moore, IV, CFSP, CCO Past President, National Funeral Directors Association Funeral Director 1591 Alps Rd Wayne, NJ 07470 |
John Fudenberg, D-ABMDI Former President/Secretary, International Association of Coroners & Medical Examiners Coroner, Clark County Office of the Coroner/Medical Examiner 1704 Pinto Lane Las Vegas, NV 89106 |
D) State/Jurisdictional Health Information Technology and Information Technology
| Kari Guida, MPH, MS Senior Health Informatician Office of Health Information Technology Minnesota Department of Health PO Box 64882 St. Paul, MN 55164-0882 |
Linette Scott, MD, MPH Chief Medical Information Officer Deputy Director, Information Management Office California Department of Health Care Services 1501 Capitol Avenue Sacramento, CA 95814 |
Panel 2. Current Status of Vital Records: Federal Perspective
A) Federal Data Steward
Delton Atkinson, MPH, MPH, PMP, FAC-P/PM
Director, Division of Vital Statistics
National Center for Health Statistics
Centers for Disease Control and Prevention
Catawba Building, Suite 200, Room 2022
3210 East NC 54
Durham, NC 27709
B) Federal Health Users
| Cathy Carter Director, Enterprise Systems Solutions Group Office of Information Technology Centers for Medicare and Medicaid Services 7500 Security Boulevard Baltimore, MD 21244 |
Karen Matsuoka, PhD Director, Division of Quality and Health Outcome Child and Adults Health Programs Group Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD 21244 |
| William Riley, PhD NIH Associate Director, Behavioral and Social Sciences Research Director, Office of Behavioral and Social Sciences Network National Institutes of Health 31 Center Drive Building 31, Room B1C19 Bethesda, MD 20892 |
Ursula Bauer, PhD, MPH Director, National Center for Chronic Disease Prevention and Health Promotion Centers for Disease Control and Prevention Chamblee Building 101, Room 8243 4770 Buford Highway Atlanta, GA 30341 |
| Michel D. Kogan, PhD Director, Office of Epidemiology and Research Maternal and Child Health Bureau Health Resources and Services Administration 500 Fishers Lane, Room 18N128 Rockville, MD 20857 |
C) Other Federal Users
| Stephen C. Goss, ASA, MAAA Chief Actuary, Office of the Chief Actuary Social Security Administration 6401 Security Boulevard Baltimore, MD 21235 |
Corryne Carter, MPA Program Analyst, Special Projects and Data Share Division Passport Services, Office of Integrity and Internal Controls Bureau of Consular Affairs US Department of State 600 19th Street, NW Washington, DC 20036 |
| Carolyn Clancy, MD Deputy Undersecretary for Health for Organizational Excellence Veterans Health Administration US Department of Veterans Affairs 810 Vermont Avenue, NW Washington, DC 20420 |
Arron M. Firoved, PhD Director, National Biosurveillance Integration Center Office of Health Affairs Department of Homeland Security Washington, DC 20528 |
Panel 3: Current Status for Vital Records: Other Users of Vital Statistics Data
A) State Users
| Rebecca Coyle, MSEd Executive Director, American Immunization Registry Association 1155 F Street, NW, Suite 1050 Washington, DC 20004 |
Michael D. Warren, MD, MPH, FAAP President, Association of Maternal & Child Health Programs Deputy Commissioner for Population Health Tennessee Department of Health Andrew Johnson Tower, 5th Floor 710 James Robertson Parkway Nashville, TN 37243 |
B) Researchers
| Mohsen Naghavi, MD, PhD Professor of Global Health Institute of Health Metrics and Evaluation (HME) University of Washington 2301 5th Avenue, Suite 600 Seattle, WA 98121 |
Rebecca B. Russell, MSPH Director, Perinatal Data Center March of Dimes Foundation 1275 Mamaroneck Avenue White Plain, NY 10605 |
C) Commercial Users
| Susan McDonald President Pension Benefit Information, LLC 711 Grand Ave, Suite 210 San Rafael, CA 94901 |
Edward Hall, JD Associate General Counsel, Chief Compliance Officer and Managing Director Verus Financial, LLC 500 Chase Parkway Waterbury, CT 06708 |
| Steven M. Emmert, JD Senior Director for Government & Industry Affairs RELX Group and LexisNexis 1150 Eighteenth Street, NW Washington, D.C. 20036 |
Panel 4: Challenges, Barriers and Potential Solutions: Federal Level
| Delton Atkinson, MPH. PMP (See contact information in Panel 2. A) |
Eric Hughes, PhD Chief Architect, Analytic Solutions MITRE Corp. 202 Burlington Rd. Bedford, MA 01730 |
| Caitlin Cross-Barnet, PhD Research Analyst Center for Medicare and Medicaid Innovation Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD 21244 |
Lakeisha Daniel-Robinson, MSPH Coordinator, Maternal and Infant Health Center for Medicaid and CHIP Services Centers for Medicare and Medicaid Services 7500 Security Boulevard Baltimore, MD 21244 |
| Ursula Bauer, PhD (See contact information in Panel 2. B) |
William Riley, PhD (See contact information in Panel 2.B) |
| Karen P. Glenn, FSA, EA, MAAA Deputy Chief Actuary, Office of the Chief Actuary Social Security Administration 6401 Security Boulevard Baltimore, MD 21235 |
Mark Bye, ASA Actuary, Office of the Chief Actuary Social Security Administration 6401 Security Boulevard Baltimore, MD 21235 |
| Benjamin Bolender, PhD Assistant Division Chief, Population Estimates & Population Census Bureau U.S Department of Commerce 4600 Silver Hill Rd. Suitland, MD 20746 |
Corryne Carter MPA (See contact information in Panel 2.C) |
Panel 5: Challenges, Barriers and Potential Solutions: Local Level
| Elizabeth W. Saadi, PhD President, NAPHSIS State Registrar and Director, Public Health Informatics Kansas Department of Health and Environment Curtis State Office Building 1000 SW Jackson Topeka, KS 66612 |
Terra J. Abrams, MBA, BPM State Registrar, Vital Records Division Center for Policy, Planning and Evaluation District of Columbia Department of Health 899 North Capitol Street NE, 1st Floor Washington, DC 20002 |
| Mary Ann Sens, MD, PhD Grand Forks County Coroner Past President, National Association of Medical Examiners Professor and Chair, Pathology Department School of Medicine & Health Sciences University of North Dakota Forensic Pathology Practice Center 1451 44th Avenue South Unit G Grand Forks, ND 58201 |
Gregory G. Davis, MD, MSPH Chief Coroner/Medical Examiner, Jefferson County, Alabama Professor and Director, Forensic Division Department of Pathology University of Alabama at Birmingham 619 19th Street Birmingham, AL 35210 |
| Amy Zimmerman, MPH HIT Coordinator, Rhode Island Executive Offices of Health and Human Services Rhode Island Department of Health 3 Capitol Hill Providence, RI 02908 |
Mary Beth Kurilo, MPH, MSW Director, Policy and Planning American Immunization Registry Association 1155 F Street NW, Suite 1050 Washington, DC 20004 |
| Michael Hogarth, MD, FACP, FACMI Clinical Research Information Officer Physician Diplomate, Division of PI, California Death Registration System (CA-EDRS) Biomedical Informatics Department of Internal Medicine University of California San Diego Health 9500 Gilman Drive La Jolla, CA 92093 |
Janet J. Hamilton, MPH President, Council of State and Territorial Epidemiologist Surveillance and Surveillance Systems Administrator Bureau of Epidemiology Florida Department of Health 4052 Bald Cypress Way Tallahassee FL, 32399 |
Panel 6: e-Health and its Relation to e-Vitals
| John Lumpkin, MD, MPH Senior Vice President – Program Robert Wood Johnson Foundation 50 College Road East Princeton, NJ 08540 |
Kalvin Yu, MD Chief Integration Officer Physician Lead, Community Benefits & Public Health Kaiser Permanente Southern California 393 E. Walnut St, 3SW, 33R10 Pasadena, CA, 91188 |
| Chesley Richards, MD, MPH, FACP Deputy Director, Public Health Scientific Services Director, Office of Public Health Scientific Services Centers for Disease Control and Prevention 2500 Century Center Parkway, Room 5202 Atlanta, GA 30334 |
Moving Forward: An Integrated Vision
Gibson Parrish, MD
Independent Consultant
481 Sligo Road
Yarmouth, ME 04096