National Committee on Vital and Health Statistics (NCVHS)

In conjunction with the National Library of Medicine

Expert Roundtable Meeting on Health Terminologies and Vocabularies

July 17-18, 2018

HHS Headquarters, Hubert Humphrey Building
200 Independence Avenue, SW, Room 705-A
Washington, DC 20201

Meeting Objectives:

  • Reach shared understanding on the current state as described in the Environmental Scan Report, including the assessment of strengths, weaknesses and gaps in the US health terminology and vocabulary (T/V) environment.
  • Consider areas for near term improvement in the development, maintenance, dissemination and adoption of named code sets.
  • Discuss opportunities for improved governance, coordination and communication across terminology and vocabulary developers and their stakeholders.
  • Identify top priority gaps in the US health terminology and vocabulary coverage.
  • Envision a roadmap for introducing improvements over the next decade.


Tuesday July 17

9:00—9:30 am Welcome and Meeting Goals


William Stead, MD


9:30—9:45 am NCVHS Health Terminologies and Vocabularies Project and Roundtable Design Linda Kloss, MA

NCVHS Committee

9:45—10:10 am  Highlights of Environmental Scan Report Susan Roy, MS, MLS

SNOMED CT Coordinator


Vivian Auld, MLIS

Senior Specialist for Health Data Standards


National Library of Medicine (NLM)

National Institutes of Health (NIH)

10:10—11:00 am Discussion Topic 1: 

Maintenance and dissemination of Health T/V:  Opportunities and principles

Roundtable Discussions
11:00—11:15 am Break
11:15—11:45 am Discussion 1 Report Out
11:45—12:30 pm Discussion Topic 2: 

Adoption new or updated health T/V versions:  Opportunities and principles


Roundtable Discussions
12:30—1:30 pm Lunch Break
1:30—2:00 pm


Discussion 2 Report Out
2:00—2:45 pm Learning from other National Health T/V Models Kathleen Morris

Vice President, Research and Analysis

Canadian Institute for Health Information (CIHI)

2:45—3:00 pm Break
3:00—4:00 pm Discussion Topic 3:

Governance and coordination across named code set developers

Roundtable Discussions
4:00—4:30 pm Discussion 3 Report Out
4:30—4:45 pm Recap of insights from the day & discussion Bill Stead, Linda Kloss
4:45—5:00 pm Public Comment Rebecca Hines, MHS

NCVHS Executive Secretary

5:00 pm Adjourn William Stead, MD



Wednesday July 18

8:30—8:45 am Review Morning Work Plan


William Stead, MD


8:45—9:30 am Discuss gaps in named standards


Susan Roy and Vivian Auld, NIH/NLM
9:30—10:30 am Review Status of ICD-11 Donna Pickett, RHIA, MPH

Chief, Classifications & Public Health Data Standards


Bob Anderson, PhD

Chief, Mortality Statistics Branch

National Center for Health Statistics/CDC

10:30—10:45 am Break
10:45—11:30 am Road-mapping Standards including Health T/V


Alix Goss and Nick Coussoule

Co-chairs Standards Subcommittee

11:30—11:45 am Next Steps in NCVHS Health T/V Project Linda Kloss
11:45—11:55 am Public Comment Rebecca Hines

NCVHS Executive Secretary

11:55—12:00 pm Adjourn Roundtable William Stead, MD
1:00—2:50 pm NCVHS Standards Subcommittee Working Session

  • Review Roundtable findings
  • Refine Health T/V Scoping Document and work plan based on findings
  • Determine how best to brief and engage the full Committee at its September meeting
NCVHS Standards Subcommittee
2:50—3:00 pm  Public Comment Rebecca Hines

NCVHS Executive Secretary

3:00 pm Adjourn William Stead, MD