Final Agenda


Ad Hoc Workgroup for Secondary Uses of Health Data

August 1 – 3, 2007

Wilbur J. Cohen Building
300 C. Street, S.W., Room 5051
Washington, DC 20201

Printable Acrobat Agenda

Wednesday, August 1


Context Setting, Background on Seminal Work

 9:00 – 9:15 a.m. Introductions and Overview Simon Cohn, M.D., M.P.H., Chair, NCVHS and Ad Hoc Workgroup for Secondary Uses of Health Data
9:15 – 10:00 a.m. Key Opportunities and Challenges in Framing Uses of Health Data John LumpkinM.D., M.P.H.Wendy PattersoncaBIG
10:00 – 10:15 a.m. Break

Perspectives on Uses of Health Data

10:15 – 12:00 a.m. Quality Perspectives Joel GoldweinM.D., Oncology Data Alliance, Elekta, Inc., ImpacScott Young, M.D., Archimedes DM Model (by phone) 
12:00 – 1:15 p.m. Lunch
1:15– 2:30 p.m. Secondary/Tertiary Uses Jean ChenowethSolucient Top 100 Hospitals
2:30 – 2:45 p.m. Break
2:45 – 4:00 p.m. Public Health/Statewide Planning Perspectives David CarlisleCalifornia Office of Statewide Health PlanningLeslie Lenert, M.D., Centers for Disease Control and PreventionVickie Hohner, Fox Systems (by phone) 
4:00 – 5:30 p.m. Working Session

Thursday, August 2


Perspectives on Uses of Health Data, Con’t.

8:30 – 10:00 a.m. Research Perspectives: Quality vs. Research; Data Use Agreements; IRB Marcelline HarrisR.N., Ph.D., Mayo, ANASharon TerryGenetic AllianceMargaret GunterHMO Research Network and Lovelace Clinic Fdn/NM RHIO
10:00 – 10:15 a.m. Break
10:15 a.m.– 11:45 a.m. Health Plan Perspectives Carmella BocchinoAmerica’s Health Insurance PlansShirley Lady, Blue Cross Blue Shield Association – BHIDeborah PeelM.D., Patient Privacy Rights Foundation
11:45 – 1:00 p.m.


1:00 – 2:30 p.m. Data Sharing Perspectives-Longitudinal Data in NHIN-New IOM Panel on Privacy

-Transparency and Authorization/Consent “on the ground”

Karen AdamsM.D., NQF Senior Program Director Additional MaterialSharyl NassPh.D., Study Dir. IOM Privacy CommitteeBarbara SiegalAmerican Health Information Management Association
2:30 – 2:45 p.m. Break
2:45 – 5:30 p.m. Working Session

Friday, August 3


8:30 – 10:00 a.m. Working Session
Framework Draft Discussion
Taxonomy Draft Discussion
Dr. Cohn
10:00 -10:55 a.m. Planning and Next Steps Dr. Cohn
11:00 a.m. Adjourn

Note: Written Testimony submitted by: Deborah Collyar, President, Patient Advocates in Research (PAIR)

August 10, 2007