Agenda of the June 9, 2009 NCVHS Subcommittee on Privacy, Confidentiality & Security Hearing

Final Agenda

NATIONAL COMMITTEE ON VITAL AND HEALTH STATISTICS

SUBCOMMITTEE ON PRIVACY, CONFIDENTIALITY, & SECURITY

Hearing on “Personal Health Records”

June 9, 2009

National Center for Health Statistics, Auditorium
3311 Toledo Road
Hyattsville, MD 20782
http://www.cdc.gov/nchs/about/hyatdir.htm

Printable Acrobat Agenda

Transcript

	Tuesday, June 9, 2009
9:00 – 9:15 a.m.	Introductions and Opening Remarks	Leslie P. Francis, Ph.D., J.D., Co-Chair John P. Houston, J.D., Co-Chair
9:15 – 10:45 a.m.	Panel VI: Federal Demonstration Projects	Patrick Conway, M.D. Office of the Assistant Secretary for Planning and Evaluation, HHS (for Medicare PHR Choice, pilot in Utah and Arizona) Seth Edlavitch, M.P.H., M.H.A. Program Manager & Project Director My Personal Health Record, South Carolina (MyPHRSC) Chrislyn Gayhead, B.S.N, RN Office of e-Health and Standards Centers for Medicare and Medicaid Services, HHS (for MYPHRSC) Elizabeth S. Holland, M.P.A. Office of e-Health, Standards and Services Centers for Medicare and Medicaid Services, HHS (for Medicare PHR Choice pilot in Utah and Arizona)
10:30 – 10:45 a.m.	Break
10:45 – 12:30 p.m.	Panel VII: Consumer Advocates and Attitudes	Susannah Fox Associate Director, Digital Strategy Pew Research Center Deborah C. Peel, M.D. Patient Privacy Rights Written Testimony Dave deBronkart (Blogger, “e-patient Dave”) Co-Chair, Society for Participatory Medicine Deven McGraw, J.D. Director, Health Privacy Project Center for Democracy and Technology Robert Gellman, J.D. Independent Privacy Consultant and Author, “Personal Health Records: Why Many PHRs Threaten Privacy” World Privacy Forum
12:30 – 1:30 p.m.	Lunch
1:30 – 1:45 p.m.	Statement from members of the public
1:45 – 3:00 p.m.	Discussion
3:00 – 3:15 p.m.	Break
3:15 – 4:45 p.m.	Discussion
4:45 – 5:00 p.m.	Plan next steps
5:00 p.m.	Adjournment

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June 16, 2009