Final Agenda



Hearing on “Personal Health Records”

June 9, 2009

National Center for Health Statistics, Auditorium
3311 Toledo Road
Hyattsville, MD 20782

Printable Acrobat Agenda


Tuesday, June 9, 2009

9:00 – 9:15 a.m. Introductions and Opening Remarks Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 – 10:45 a.m. Panel VIFederal Demonstration Projects Patrick Conway, M.D.
Office of the Assistant Secretary for Planning and Evaluation, HHS (for Medicare PHR Choice, pilot in Utah and Arizona)

Seth Edlavitch, M.P.H., M.H.A.
Program Manager & Project Director
My Personal Health Record, South Carolina

Chrislyn Gayhead, B.S.N, RN
Office of e-Health and Standards
Centers for Medicare and Medicaid Services, HHS

Elizabeth S. Holland, M.P.A.
Office of e-Health, Standards and Services
Centers for Medicare and Medicaid Services, HHS
(for Medicare PHR Choice pilot in Utah and Arizona)

10:30 – 10:45 a.m. Break
10:45 – 12:30 p.m. Panel VIIConsumer Advocates and Attitudes Susannah Fox
Associate Director, Digital Strategy
Pew Research Center

Deborah C. Peel, M.D.
Patient Privacy Rights
Written Testimony

Dave deBronkart
(Blogger, “e-patient Dave”)
Co-Chair, Society for Participatory Medicine

Deven McGraw, J.D.
Director, Health Privacy Project
Center for Democracy and Technology

Robert Gellman, J.D.
Independent Privacy Consultant and
Author, “Personal Health Records: Why Many PHRs Threaten Privacy”
World Privacy Forum

12:30 – 1:30 p.m. Lunch
1:30 – 1:45 p.m. Statement from members of the public
1:45 – 3:00 p.m. Discussion
3:00 – 3:15 p.m. Break
3:15 – 4:45 p.m. Discussion
4:45 – 5:00 p.m. Plan next steps
5:00 p.m. Adjournment

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Times, topics, and speakers are subject to change.  For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at
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June 16, 2009