Final Agenda


Full Committee Meeting

Hubert H. Humphrey Building, Room 705-A
200 Independence Ave, SW
Washington, DC 20201

September 20 – 21, 2012

Printable Acrobat Agenda 

Meeting Minutes

Day 1 – Thursday, September 20


9:00 a.m. Call to Order, Welcome, Review of Agenda Dr. Justine Carr
9:10 a.m. Updates from the Department

  • CMS
  • ONC
Mr. James Scanlon, ASPE

Denise Buenning, CMS

Jodi Daniel, ONC

10:30 a.m. Break
10:45 a.m. Data Stewardship in Community Health Data, Report – Discussion for ACTION on 9/21 Dr. Leslie Francis and Ms. Linda Kloss
12:00 p.m. LUNCH
1:00 p.m. Standards – Code Sets, Operating Rules and Administrative Simplification – Discussion for ACTION on 9/21 Dr. Walter Suarez and Mr. W. Ob Soonthornsima
1:45 p.m. NCVHS Executive Subcommittee (August 9) Strategic Planning Session

  • Guiding Principles
  • Priorities
  • “Convergence and Alignment Framework”
  • Research Agenda
Dr. Carr
3:00 p.m. Adjourn Plenary
Breakout Sessions
3:30 p.m. Subcommittee on Standards Dr. Suarez and Mr. W. Ob Soonthornsima
4:30 p.m. Subcommittee on Privacy, Confidentiality and Security Dr. Leslie Francis and Ms. Linda Kloss
5:30 p.m. Meetings Adjourn for the Day

Day 2 – Friday, September 21

Committee Theme Sessions


8:00 a.m. – 9:45 a.m. Empowering Communities, Individuals and Families

  • Community Health
  • Health Data Stewardship
  • Community Health Indicators
Dr. Green, Ms. Milam, Dr. Tang
Full Committee Meeting – Plenary Session


10:00 a.m. Call to Order, Review Agenda Dr. Carr
10:15 a.m. Standards Administrative Simplification Letter – ACTION
Outline of HIPAA Report (Discussion)
Dr. Carr
Dr. Suarez
11:00 a.m. Privacy Community Health Data Report – ACTION Dr. Carr
11:45 a.m. NCVHS – Summary Steps and Future Directions Dr. Carr
12:30 p.m. LUNCH
1:00 p.m. De-identification methods for Open Health data Mr. James Scanlon, Jonanthan Gluck, and Khaled El Aman (via phone)

1:50 p.m. Adjourn Full Committee Meeting Dr. Carr
2:00 p.m. Working Group on Data Access & Use
Introductions – Review Agenda


Meeting Minutes

Dr. Carr
2:15 p.m. HHS Chief Technology Officer Perspectives Bryan Sivak, HHS Chief Technology Officer

2:40 p.m. Overview of NCHS Data Products and Services Jim Craver, NCHS

3:00 p.m. Overview of CMS Data Products and Services Allison Oelschlaeger, CMS
3:30 p.m. HHS Approaches to Dissemination Mr. Scanlon, ASPE
3:45 p.m. How can HHS improve outreach to developers?

  • Methods and Opportunities?
  • New Data Sources?
  • Issues and Concerns?
  • Next Steps?
Working Group
5:00 p.m. Adjourn Workgroup Dr. Carr
2012 & 2013 Meeting Dates – Full Committee

November 13 – 14 – Tues/Wed
February 28 – March 1 – Thur/Fri
June 19 – 20 – Wed/Thur
Sept 16 – 17 – Mon/Tue
Nov 13 – 14 – Wed/Thur

Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible.

Times, topics, and speakers are subject to change.  For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at

October 24, 2012